Posts

To Be or Not To Be...Politically Correct

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I am super excited because I have a lot of friends finally feeling like they can come to me with the hard questions regarding having a child with autism. I always will say if you have met a child with autism, you know one child with autism. They call it a spectrum but I have decided, its like a rainbow. There are so many colors. There is so much autism encompasses that one can not totally understand every aspect, even when they are down and dirty in the trenches and we are currently DOWN and DIRTY!

Today as I cleaned my house from top to bottom anxiously anticipating meeting my sister and niece and nephew a message came to me in my Facebook Messenger. As much as I *hate* social media, I also find it to be a great avenue to help when used appropriately (more on that later). The question posed to me was what to call a child who is on the autism spectrum? It seemed to me that the individual asking was in close proximity to a child with autism but is afraid to step on toes. Whose toes? Pe…

How Does Autism Manifest in Serrie?

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The other day a dear friend, one I have known since college and left in Michigan texted and asked how autism manifests in Seraphina. I wanted to respond instantly but honestly the wheels started spinning and I couldn't put it into words in a simple text. As I sat in bed this morning sipping hot coffee and reading a blog post from fellow ASD momma, faithmummy, I realized it manifests in so many ways. I also realized the words that she wrote resonated within and while my child isn't her child, my sentiments as of late are the same she feels. It doesn't just manifest in Serrie, it manifests in all of us. I began to scroll through my phone pictures and realized Serrie having autism impacts us all in each of our daily lives. That impact isn't all negative but none the less it changes each moment of every day.



It impacts us when she wakes screaming because someone looked at her or got to close. It impacts me and causes me to feel as if there are nails on a chalkboard from th…

Inclusion

According to wikipedia, inclusion education is defined as "an approach to educating students with special educational needs. Under the inclusion model, students with special needs spend most or all of their time with non-special needs students. ... By contrast, inclusion is about the child's right to participate and the school's duty to accept the child.

I read this and think about my child, other children I know and how inclusion is an amazing concept but has miles to go, not because of children but because of parents.

I am scared. Scared about our society in general but more scared about the lack of knowledge and understanding so many have about disabilities and inclusion. I have had parents unaware of the fact I have a disabled child say they don't want their child in "that class" or parents who are quick to believe "not my child" when it comes to having a child with a disability.

First, I have always been open to inclusion. My mom was educating in…

Just A Ballot (probably not going to win me any friends)

Years ago, I saw voting as "just a ballot". It was immaturity, my being unaware and just plain too self absorbed to worry about much. Our nation is a mess and while I can't make statements to our major governments, the local government, specifically the school board has come under fire in recent years.

Last year there was a new budget proposal. The proposal had the potential to cut many sports leaving many people up in arms about how the district was being handled. At the time, we were new to the district and had yet to have a child in the regional district so I didn't feel the impact as much.

In the past year, I have changed. In so many ways. I have started to stand up for my beliefs and trying to agree to fit in has been less on my mind than it has been in my 37 years prior. With children ranging the gamut of gifted to special needs, interested in sports to interest in drama, I feel I see the "BIG" picture. I also feel as a former college athlete (my husba…

Longing

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Last week my birth father visited with his wife, both are kind. They have a heart of gold and my birth father's wife is a gift for allowing me to learn more about who I am genetically, who I was initially and how I may have qualities of someone I never knew. The days that we shared had so much good.  It was moments of connecting that we had never experienced. Just a little over a month ago, he learned of my existence and instead of pushing me away, he welcomed me and my family into his heart. As we talked, we shared as much as we could about our 38 year absence. When he arrived I had photo albums. We went through all my parents did for me. They have always given me all they can. I am blessed to be their daughter.

Over the weekend, we tried to share so much. One night, we sat. As we chatted, my husband began to cast videos of our children from years ago so they could watch their new grandchildren in their early years.

Each year passed. First, there was our oldest as a toddler and o…

Manual Please????

I am behind.

In everything.

I want to catch up.

My flower beds need work.

My doors need to be scrubbed and I want to sit and begin three writing projects that I have swirling within me.

Here I sit. Worried. Scared. Sad and wondering.

Begging for a manual.

Its not for autism this time. Strangely, that seems it will make this middle school journey easier.

Its not for the school itself. Its awesome. The teachers are amazing and I was impressed at back to school night.

Its for me. Or for me to learn how to help my child.

Middle School, it was a horrendous time for me. I have shared all the details before but I wasn't cute or funny and I wasn't cool. I was smart but played dumb so others would like me. Middle School changed me. Seventh grade my world turned in ways that I never expected and today I cannot forget. I was pantsed in the hallway and it continues to haunt me. I stood outside Mrs. Moffa's Science Class after lunch and he did it. He pantsed me. As everyone stood stari…

To My Daughter's Daytime Mommy

I always wondered what it would be like to be in a classroom with inclusion. When I was a child, it wasn't done. When my mom taught as I grew, it was introduced and now, its in almost every classroom at many schools. I always wondered what other kids thought about it. Did they know who the child's aides were? Did they understand why they were there? What if children thought they were mean or scary and the little ones couldn't share their feelings.

For me, I know at our district we are blessed. I have more than fallen in love with every aide and paraprofessional I have encountered. I have watched, when my oldest was young and sat in awe as they carefully lead students to where they needed to be with kindness and compassion. I looked on when kids were struggling and saw their eyes moisten knowing that the child was hurting. I knew our district was doing the best they could but I still wondered do the children see what I see?

Now that I am a parent of a child with special nee…